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The pilot project "Patient Narratives as Co-production" researched participatory research. It aimed to improve the understanding of how participation is experienced  and how these experiences shape the research and mediation of individual experience of disease and health care.

Context

The project was based on DIPEx Switzerland, the Swiss database of individual patient experiences, which records narratives of patients between health and illness in the form of narrative interviews. Founded in 2017, it made them publicly accessible in excerpts (video and/or audio files) on a website from spring 2021.

About the project

"Patient Narratives as Co-production" examined how the potential of the DIPEx research and mediation process can be expanded and improved through a higher degree of participation by participants and affected users.

• How can participation by the target group be rethought and expanded?
• What new perspectives on the potentials of participation in qualitative research processes are revealed by this?
• How can these findings be used for digital communication and dissemination of research results and impact health literacy?

The metaperspective on participation can highlight and address a gap in the dialogue between researchers, citizens and mediation experts. Project partner is the Swiss project DIPEx.ch of the Institute for Biomedical Ethics IBME.